A report in today’s Seattle Times suggests that cholesterol lowering statins will be in most of your futures. Based on research from Duke University (which surveyed 4,000 people) it is now estimated that half of US adults between the ages of 40 to 75, and nearly all men over the age of 70 meet recently changed criteria for the use of statins.
The guidelines for the use of statins were devised by the American Heart Association and the American College of Cardiology. The Duke study estimates that half a million strokes and heart attacks over a ten year period could be prevented if the new guidelines were followed.
There is some criticism of the new guidelines which favor the use of statins over other lifestyle changes (such as not smoking or working to reduce stress).
Last evening (Tuesday March 18, 2014) the Northwest Association for Biomedical Research (NWABR) hosted a Community Conversation that explored the issues around Direct-To-Consumer Genetic Testing.
These Community Conversations are a partnership between NWABR and the Institute for Translational Health Sciences at the University of Washington. The purpose of these Community Conversations is to enable members of the public to become engaged with emerging issues in the bioscience realm. Our hope is that an engaged public will be better placed to think through complex scientific and ethical issues, make informed contributions, build relations with experts in the field – and most importantly – provide those same experts with feedback from a community perspective on these issues.
At the Community Conversation hosted yesterday evening around 35 people gathered to discuss direct-to-consumer genetic testing services. The company 23andMe has been providing this service to customers and approximately 650,000 people have both had their DNA tested and agreed to share their records to help build a DNA database that will, hopefully, in the future improve the accuracy of the findings that 23andMe can report to their customers.
The FDA has asked 23andMe to stop marketing the health benefits of this testing service and to no longer provide direct findings to customers about any health implications arising from the genetic tests that they perform. The FDA is concerned that a consumer may misinterpret the results that they receive from 23andMe and subsequently make poorly informed health care decisions.
Yesterday’s Community Conversation was held at Kakao Chocolate + Coffee in Westlake. The Conversation was facilitated by Sarah Nelson and Lorelei Walker, who are MPH and PhD candidates in Public Health Genetics at the University of Washington. Following the presentations from Ms. Nelson and Ms. Walker the participants had a wide ranging discussion that touched on: privacy, trust, potential commercializing of DNA, the need for access to this information. the need for help in interpreting the information, resistance from some members of the medical community, the current lack of diversity in the 23andMe database, support for and frustration with the FDA and much more.
As we the staff at NWABR watched the conversation progress we were amazed that such a great group had come out on a Tuesday evening, given up their own time, and dived so eagerly into this complex area. We were again reminded of just how rich discussions can be when these two sometimes diverse worlds come together.
Northwest Association for Biomedical Research
Students entering 9th-12th grade can now sign-up for three of the four exciting summer camp sessions organized by Northwest Association for Biomedical Research (NWABR). Each of the four camp tracks for Camp BIOmed are a week long and will be repeated for seven weeks, starting July 7 through August 23.
Students and parents can register and find additional information about the programs at www.nwabr.org/campbiomed.
The four summer camp programs focus on various topics relating to biomedical research and its ethical conduct, which include:
Bioethics thru Gaming
Protein Foldit! Be a Citizen Scientist
Hive Bio (Do it Yourself) Lab with Neuroscience
Lab Intensive Experience
Throughout the summer camps, students will take part in hands-on experiments at local biomedical businesses and research facilities, track their own findings as part of these experiments in lab journals, and tour local Seattle biomedical organizations. Each week of the summer camp will conclude with a culminating expo where campers will share all group and individual projects and contributions.
Early bird registration is open now for members for $450-$525 depending on track. Non-members can begin registering on January 29 by signing up as a member ($25, plus the camp fee). The price for camp for all will increase after March 31 by $90 for all tracks. Financial assistance for partial camperships are available for students to attend the program. The financial assistance application is available in the camp registration at http://www.nwabr.org/campbiomed
To register for Camp BIOmed check out www.nwabr.org/campbiomed
For more information, contact firstname.lastname@example.org
NWABRs mission is to promote the understanding of biomedical research and its ethical conduct. NWABR is dedicated to strengthening public trust in biomedical research, through education and dialogue. Through our diverse membership of academic organizations, biotech industry, non-profit research institutes, health care, and voluntary health organizations, along with extensive education programs, we foster a shared commitment to the ethical conduct of research and ensure the vitality of the life sciences community.